Quick response to couple of questions

Some have asked a couple of questions which others might be wondering about.


If you scroll down to the Xray of Guy's chest taken the night he was admited (a lifetime ago) you can see the large white mass. Well, that's his heart. Needless to say it should be about the size of a small apricot, rather than the whole orchard!

Long term prognosis - it's hard to tell. There are some scary statistics on survival rates in kids out there on various websites. We are relying on medical science doing what it needs to do. It has saved his life many times over just through the drugs that are available now that weren't a few years ago. Quite literally one of them is less than 3 years old and has been his own miracle drug. A few more of those will be great! Some of you have forwarded some really interesting articles through. Please keep them coming if you find them.

What next? Once he's on the optimum drug levels (and the blood thinner / rat poison) it will hopefully be a case of monitoring him from time to time to see how his heart is and keep the drugs going. We'll have to continue to be a bit more paranoid about fever type bugs, but hopefully get him back to daycare a couple of days a week.

If you don't ask... This might be a bit cheeky, but you keep asking so...

Another idea for assistance - some of you will have read on here about good friends up the road Reece (who helped with wallpapering last weekend) and Bridgit (who constantly looks after and feeds our kids and us!) and their 2 kids Bryn (Meg's mate) and Eva. Bridgit and a friend have entered the Cure Kids Auckland to Queenstown Challenge where they have to get to Queenstown on $10. It is a fundraising exercise and they have to raise $7000 by October.

Cure Kids are a supporter of the research team we are linked in with who look at cardiac diesease in the young. They are a great charity who support enormous reasearch into kids dieseases. http://www.fundraiseonline.co.nz/BridgitandLeah/ This is their website. If you have any ideas on how to raise some $ or connections with companies who may donate goods or services for auctions, or just have some spare cash, this is a great cause.