Starship Fly Guy

Hi everyone

If you haven't caught up with our news, Guy was admited to hospital last week with Cardio Myopathy. Many of you have sent wonderful messages, wonderful cakes / soups/ dinners and wine (thank you George for that inspiring idea, all very naughty in the hospital, but the nurses turned a blind eye!) and love. Thank you.

I know I've struggled to keep everyone up to date with what is happening so I thought I might do this and you can check it and others can update if we are unable to do so.

So, what's the latest, after 8 days in Starship's Cardio Ward?

After initially feeling much better, Guy's had a rough couple / three days and can't keep food down. He's on new meds to help try and get the heart contracting better, and get more blood to the stomach to assist digestion. Hopefully this works.

It seems we are in a common spiral of having to deal with a maze of symptoms which, while not immediately life threatening, are not assisting in him being in any shape to improve.

We won't know if he is one of the lucky ones to recover from the condition for weeks or months. All pretty energy saping stuff.

Today we were offered the chance to use the hospital's "consultant services". 'The what??' We asked. Yes, it's the fab new PC term for hospital shrink!

Family and friends have been great and we won't need to cook for weeks! I've offered to feed half the parents on the ward.

No surprises that our room on the ward isn't the tidiest.. it is the one that looks like a magazine shop / toy world / playcentre. We've had to move rooms twice today and you can see the orderlies roll their eyes as we move it all. We pile it all onto the bed and balance wee Guy on top...

Meg is all a bit sad about having Guy at hospital and just wants him home to play, as we all do. She's being a fabulous big sister and runs in to cover him in kisses and hugs every day.

Must get some sleep as my night off hospital duty.

Tess