Monday

We've had a great weekend with Guy and Meg having lots of fun with lots of visitors.

On Saturday afternoon we had our CPR training organised by Heart Children, free for heart families. It was great to do and I think everyone feels much more informed about what the latest practices are for CPR and choking in children and adults.

The kids watched DVDs and the adults (plus Reilly) were educated. Thanks to Rachel and Nick for the catering and Reece, Bridgit, Noos, Dave, Moira, and Kat for giving up a few hours on your Saturday night. It felt wonderfully normal as a 'pot luck' dinner as well.

On Sunday Rach Butterick and Cat Williams were delivered from the airport by Lucy Hall. We had a great gossipy lunch and caught up with the school reunion photos while Meg waited for Sam to arrive... Cat taught Meg to play noughts & crosses and 'hangman' (yes Meg is only just 3 and didn't catch on). Rach has been doing what Rach does best for the last couple of day - being incredibly helpful and keeping us fed and watered. Thanks Mike for letting her come away!

Nic, Louise, and Gimmy O'Rourke have been over today and Guy and Meg have loved it. Guy's eating almost normally which is wonderful. He is just getting more and more energy and happier every day. We don't seem to be yet seeing any effects of the levosamden wearing off (it's been over a week and it should last for a week to 10 days).

Wednesday's appointment is the next medical milestone and we'll know more then.

Bevan has been busy building a storage cupboard in the hall so can't wait to have it finished and, after 5 years, have a linen cupboard. Next DIY project is to get the big spare room finished and get the kids, or at least their toys, into it. Going forward we may need Guy in his own room.

Thanks for all the messages, they are lovely to get. We hope you are all well.
Tess